One really positive thing about being on the internet and having thyroid disease is being able to compare and contrast your experience with other people. There are so many support groups out there with literally thousands of people sharing their experiences. There is also blogs, articles and information all over the place. While some of this information doesn’t apply to everyone, what it does do, is allow a person to start to see patterns.
When you start talking to other people from other places, you can see whether or not a particular issue that you are dealing with is common with other people. You can help yourself figure out if that crazy thought you are having is something you alone are thinking or if fifty others are also having crazy thoughts. You can find out options that other people have tried. You can find out the good, the bad and the ugly of treatment options out there.
You still have to put on your critical thinking hats to deal with the information, like you do with anything on the internet. Don’t let yourself fall for lose weight quick, or those “heal your thyroid” miracle sounding cures on the internet. If it sounds too good to be true, it probably is. A little skepticism is a good thing. Mind you, do not close your mind off to everything, but make sure anything you hear you confirm with multiple reputable sources before you try anything you have read about. While there is a lot of good information out there, there is also people waiting to prey on those of us with chronic illness, and we can find things that will actively hurt us in the guise of helping.
If you are open to it, start doing your own research on your thyroid condition. Talk to people online. Join a thyroid support group and start reading what other people are experiencing. This is something that has helped me immensely over the last few years. I have been in several thyroid support groups over the years, and I started seeing recurring topics show up. Topics that you never see in articles online or hear about from your doctor. This enabled me to do some more research and find things that doctors do not seem to be aware of. The reason, for this I feel, is that doctors know about what they have learned in medical school, they may see a dozen or so thyroid patients in their lifetime or a few more, so patterns of other things do not show up in those situations. If you are online with a thyroid support group, depending on the size you get a much larger sample of people coming together. People will also talk about their entire lives on support groups, not just things they think of as thyroid related issues. When you hear about people talking about obsessive thoughts for instance, or problems with their menstrual cycles and those people number in the hundreds, you start to think just maybe there is a connection. Maybe people with thyroid issues deal with much more than the medical profession knows about, and maybe the thyroid causes much more than just the issues that are mentioned commonly.
Some of the common topics I hear about on thyroid support boards including the following:
- Obsessive thoughts. A lot of people are finding they are struggling with obsessive thoughts, either dark and negative or just ultra focused on some strange thing in their lives. OCD behaviors also start hitting people, especially people who are hypothyroid.
- Anxiety in general. Having a chronic health issues like thyroid disease makes people feel more vulnerable and worry more about how to deal with things in their lives.
- For women, menstrual cycle issues. So many woman have reported extra long and heavy periods, or no periods at all, or spotty periods. More PMS symptoms and more issues with fatigue than normal around their menstrual cycle.
- For men, loss of sex drive and fatigue and stamina issues. Many men on the thyroid boards report they feel like they are much older than they actually area. Some of them are finding they are having low T issues as well.
- Sudden sensitivities to foods. A lot of people seem to be finding that since their thyroid diagnosis they cannot tolerate certain foods. They have new food allergies, or foods they ate for years suddenly give them gastric distress or make them feel ill when they eat them.
- General lack of energy. Even when thyroid levels are more normalized with medications, people report that they just don’t have the same energy they did before thyroid disorder. Doctors will tell them that their thyroid levels are normal so deal with it. When they get further testing on vitamins and minerals they find that they are…
- Low on necessary vitamins and minerals.I blogged about low Vitamin D recently, and that’s one of the big ones that people become deficient after developing thyroid disorder. People who get their vitamins and minerals tested also have reported low calcium, magnesium and other issues. Being low in nutrients can make a person not feel at their best. If you look at all the stories from people online there seems to be a connection between thyroid issues and other deficiencies in the body.
- Catching every virus that comes around. A lot of people report more illness in general since their thyroid diagnosis. People who never or rarely got sick will catch every cold and bug that goes around. When they do get ill, they can’t seem to get over it as fast. Something that they might have gotten over in a few days will drag on to a week or two sometimes. I frequently see this topic going around, especially in the fall and winter months.
- Feelings of isolation. Having thyroid disease can be very isolating for people. A lot of people can mentally deal with the idea of an illness you have and then get over. Thyroid disease does not go away. It stays with you forever, and can affect you at any time. Sometimes people with thyroid disease will lose friends and family who just cannot deal with their constant health issues. So a person is abandoned at a time they need support the most.
- Finding a thyroid support group online can help. Finding the right support group online is generally reported as a positive thing by most thyroid patients. There are many out there with different objectives and personalities, so just about anyone can find one that is helpful. People report when they can share their experiences online with others, they don’t feel so alone. They can talk about feelings that have bothered them and have them validated by others who have been there. They don’t have to feel like that are a freak or a crazy person, and they can find more possible solutions than any one doctor will ever be able to tell them about. The more people who band together, the more information and support will be available for all.
What I have found is that people working together can produce remarkable results. Share your thyroid experiences with others, so they also feel empowered. Share your information you learn so people can go to their doctors more educated and confident. The more of us who work together, the better things will be for all thyroid patients. Together we are stronger!